3+ day, 22+ hour ago  (232+ words) Beeping ER machines never fail to take me back to the night our lives changed Written by Helen Baldwin | June 1, 2026 I sometimes experience an unexpected blast into the past. For example, if the weather has just the right balance of…...

3+ hour, 38+ min ago  (685+ words) Study: Assessment crucial regardless of motor function level, treatment received Written by Lila Levinson, Ph D | June 1, 2026 Problems with swallowing, also called dysphagia, remain a concern for many children with spinal muscular atrophy (SMA) type 1 despite available treatments, a real-world…...

3+ day, 4+ hour ago  (615+ words) Written by Andrea Lobo | May 29, 2026 Blood levels of tiny cell-released particles called extracellular vesicles (EVs) could serve as a tool to track disease progression and treatment response in people with spinal muscular atrophy (SMA), a small study suggests. Researchers discovered…...

6+ day, 3+ hour ago  (285+ words) As SMA care changes, a new platform seeks answers from families Written by Mindy Henderson | May 28, 2026 For people living with spinal muscular atrophy (SMA) and the families who support them, the last several years have brought something many of us…...

1+ week, 4+ day ago  (649+ words) The trade-off for missing out on fun is function " at least, it's supposed to be Written by Sherry Toh | May 22, 2026 Note: This column describes the author's own experiences with fentanyl and other pain medications. Not everyone will have the same…...

1+ week, 6+ day ago  (1024+ words) Use of DMTs shown to help type 1, 2 children sustain healthy weight: Study Written by Lila Levinson, Ph D | May 18, 2026 Disease-modifying therapies can help children with SMA types 1 and 2 maintain a healthy weight and prevent stunted growth, a study suggests. Treated…...

2+ week, 3+ day ago  (698+ words) Review finds CSF markers tied to motor gains need more study Written by Steve Bryson, Ph D | May 15, 2026 Treatment with Spinraza (nusinersen) was linked to measurable changes in a range of cerebrospinal fluid (CSF) biomarkers in people with spinal muscular…...

2+ week, 5+ day ago  (575+ words) Why do we blame mothers when their child doesn't have a clean bill of health? Written by Sherry Toh | May 14, 2026 "You must have dropped the baby." That sentence was one of the many knives flung at my mother's chest when…...

2+ week, 6+ day ago  (412+ words) Our new family member is the epitome of resilience Written by Helen Baldwin | May 13, 2026 Three months ago, my husband, Randy, and I adopted Ellie, a mama dog who had been at the rescue for four months. She arrived with six…...

2+ week, 5+ day ago  (572+ words) Written by Steve Bryson, Ph D | May 13, 2026 Evidence-based guidelines have been developed for newborn screening (NBS), diagnosis, and early management of spinal muscular atrophy (SMA) in Australia and New Zealand to help ensure that all affected children are identified and…...